Rationale for a Swedish cohort consortium

  • Johan Sundström Department of Medical Sciences, Uppsala University, Uppsala, Sweden; Uppsala Clinical Research Center (UCR), Uppsala, Sweden http://orcid.org/0000-0003-2247-8454
  • Cecilia Björkelund Department of Public Health and Community Medicine/Primary Health Care, Institute of Medicine, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden
  • Vilmantas Giedraitis Department of Public Health and Caring Sciences, Uppsala University, Uppsala, Sweden
  • Per-Olof Hansson Department of Molecular and Clinical Medicine, Institute of Medicine, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden
  • Marieann Högman Department of Medical Sciences, Uppsala University, Uppsala, Sweden http://orcid.org/0000-0002-6392-6092
  • Christer Janson Department of Medical Sciences, Uppsala University, Uppsala, Sweden
  • Ilona Koupil Department of Public Health Sciences, Stockholm University, Stockholm, Sweden; Department of Public Health Sciences, Karolinska Institutet, Stockholm, Sweden
  • Margareta Kristenson Department of Medical and Health Sciences, Division of Community Medicine, Link€oping University, Linköping, Sweden
  • Ylva Trolle Lagerros Department of Medicine, Unit of Clinical Epidemiology, Karolinska Institutet, Stockholm, Sweden; Department of Endocrinology, Metabolism and Diabetes, Karolinska University Hospital Huddinge, Huddinge, Sweden
  • Jerzy Leppert Västerås Centre for Clinical Research, Uppsala University, Uppsala, Sweden
  • Lars Lind Department of Medical Sciences, Uppsala University, Uppsala, Sweden
  • Lauren Lissner Department of Public Health and Community Medicine/Epidemiology and Social Medicine, Institute of Medicine, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden
  • Ingegerd Johansson Department of Odontology, School of Dentistry, Umeå University, Umeå, Sweden; nDepartment of Medical Epidemiology and Biostatistics, Karolinska Institutet, Stockholm, Sweden
  • Jonas F. Ludvigsson Department of Medical Epidemiology and Biostatistics, Karolinska Institutet, Stockholm, Sweden; Department of Pediatrics, Örebro University Hospital, Örebro University, Örebro, Sweden
  • Peter M. Nilsson Department of Clinical Sciences, Skåne University Hospital, Malmö, Lund University, Lund, Sweden
  • Håkan Olsson Department of Clinical Sciences, Cancer Epidemiology, Lund University, Lund, Sweden http://orcid.org/0000-0002-8794-9635
  • Nancy L. Pedersen Department of Medical Epidemiology and Biostatistics, Karolinska Institutet, Stockholm, Sweden http://orcid.org/0000-0001-8057-3543
  • Andreas Rosenblad Västerås Centre for Clinical Research, Uppsala University, Uppsala, Sweden
  • Annika Rosengren Department of Molecular and Clinical Medicine, Institute of Medicine, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden
  • Sven Sandin Department of Medical Epidemiology and Biostatistics, Karolinska Institutet, Stockholm, Sweden; Department of Psychiatry, Icahn School of Medicine at Mount Sinai, New York, NY, USA; Seaver Autism Center for Research and Treatment at Mount Sinai, New York, NY, USA
  • Tomas Snäckerström Uppsala Clinical Research Center (UCR), Uppsala, Sweden
  • Magnus Stenbeck Department of Clinical Neuroscience, Karolinska Institutet, Stockholm, Sweden
  • Stefan Söderberg Department of Public Health and Clinical Medicine, and Heart Center, Umeå University, Umeå, Sweden
  • Elisabete Weiderpass Department of Medical Epidemiology and Biostatistics, Karolinska Institutet, Stockholm, Sweden; Department of Research, Cancer Registry of Norway, Institute of Population-Based Cancer Research, Oslo, Norway; Genetic Epidemiology Group, Folkhälsan Research Center, Faculty of Medicine, Helsinki University, Helsinki, Finland; Department of Community Medicine, University of Tromsø, The Arctic University of Norway, Tromsø, Norway http://orcid.org/0000-0003-2237-0128
  • Anders Wanhainen Department of Surgical Sciences, Uppsala University, Uppsala, Sweden
  • Patrik Wennberg Department of Public Health and Clinical Medicine, Family Medicine, Umeå University, Umeå, Sweden
  • Isabel Fortier Research Institute of the McGill University Health Centre, Montreal, Canada
  • Susanne Heller Uppsala Clinical Research Center (UCR), Uppsala, Sweden
  • Maria Storgärds Uppsala Clinical Research Center (UCR), Uppsala, Sweden
  • Bodil Svennblad Uppsala Clinical Research Center (UCR), Uppsala, Sweden
Keywords: Common infrastructure, epidemiological research, pilot study, rare outcomes, Swedish cohort consortium

Abstract

We herein outline the rationale for a Swedish cohort consortium, aiming to facilitate greater use of Swedish cohorts for world-class research. Coordination of all Swedish prospective population-based cohorts in a common infrastructure would enable more precise research findings and facilitate research on rare exposures and outcomes, leading to better utilization of study participants’ data, better return of funders’ investments, and higher benefit to patients and populations. We motivate the proposed infrastructure partly by lessons learned from a pilot study encompassing data from 21 cohorts. We envisage a standing Swedish cohort consortium that would drive development of epidemiological research methods and strengthen the Swedish as well as international epidemiological competence, community, and competitiveness.

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Published
2019-01-08
How to Cite
Sundström, J., Björkelund, C., Giedraitis, V., Hansson, P.-O., Högman, M., Janson, C., Koupil, I., Kristenson, M., Trolle Lagerros, Y., Leppert, J., Lind, L., Lissner, L., Johansson, I., Ludvigsson, J. F., Nilsson, P. M., Olsson, H., Pedersen, N. L., Rosenblad, A., Rosengren, A., Sandin, S., Snäckerström, T., Stenbeck, M., Söderberg, S., Weiderpass, E., Wanhainen, A., Wennberg, P., Fortier, I., Heller, S., Storgärds, M., & Svennblad, B. (2019). Rationale for a Swedish cohort consortium. Upsala Journal of Medical Sciences, 124(1), 21–28. https://doi.org/10.1080/03009734.2018.1556754